While I was trying to scale my own personal mountain, H. and Figgy were scaling awesome Mt. Katahdin. |
- The rain. I like how it feels, how it sounds, how it looks and what it does. H. grew an amazing tomato this summer already, thanks in part to the rains. His tomato looks and tastes as good as the local heirloom tomatoes at Whole Foods. And it has that farmy, imperfect shape and color--nothing forced or cellophane-packed about it.
- The very pretty granite remnant I found at the granite place for our new bathroom vanity at home. Its swirly, pebbly gray and white pattern reminds me of Maine's rocky coast. And because it's a remnant, it's also a steal compared to full price.
- Whole Foods in Paramus being open til 10, so I was able to stop in and get some healthy-ish foods on my way home from the hospital.
- Call from my sister-in-law Therese in Maine today. She caught me on my cell at the FedEx store and told me she hopes things with Dad unfold as they should, and that she has come to realize that nature is a good teacher, showing us the beautiful way things grow and go in cycles. I was the woman crying by the door. She also gave me some ideas--bring ice cream to Dad, talk about fun things we did. I did both. Brought a Ben & Jerry's coffee shake [he only had a few sips] and talked about the barbecue pit he dug in the ground out back and the baby bird he tried to save by feeding with my dolly bottle.
- The hospital chapel, open all hours.
- Generous friends and family--generous with their time, their laughter, their hearts, their compassion, their phone calls, their car. They know who they are.
- H., Figgy, H.'s brothers Pat and Dave and Dave's teen son Will hiked to the top of Mount Katahdin in Maine today. They left Bangor about 4:30 A.M. to drive there and H. didn't get back to the parking lot till about 8 P.M. I think it takes 10 hours to go up and down that giant mountain. I spoke to Figgy after. It was really hard, but it was worth it, she said. The view from the summit was amazing. May her mountain-climbing power stand her in good stead. May her inner strength at [almost] 15 propel her forward in the right direction through life.
Bad:
- Dad still not up and walking. Still barely eating. Catch-22: If you don't eat, you won't get nourishment and have the strength to stand up. And if you can't stand, we can't let you even try walking. But it's a circle--how do you break in and win? Will you get the chance and seize it?
- We still have to select a nursing home, worst of all. Sis and I hope Dad can leave by Monday but we really don't know.
Ugly:
- Dad being in pain for hours this evening. He was moaning and groaning and highly uncomfortable. It's not like him to moan and groan. He was writhing in pain, pulling out the oxygen tube, trying to get his hospital gown off his shoulder. Ow, ooh, ow, he said over and over. First, the nurses thought changing the Depends and switching his position in bed would help. But it didn't. He has a bed sore and a rash and also feels penned in that bed after more than three weeks. Finally, I asked them to give him a painkiller, but it took about an hour to work. This was agonizing. I felt helpless. I kept trying. He asked me again and again to fix the pillow at his head, move the one under his feet. Observing someone I love in pain made me think of how men must feel when they have to stand by and let their women do the work of giving birth. It also made me think of my Dad's mother and how she would feel about this, her baby boy. Can she see from heaven, do you think? And I remembered that book Death Be Not Proud, written by John Gunther about his teenage son Johnny, who died of a brain tumor at 17. Johnny's parents surely went through some of this.
- Seeing a hint of a bad side in someone you only want to see good in. I only want to see good in his nurses, not someone "joking" with my Dad that he must say the magic word to get another spoonful of God-awful hospital mashed potatoes and reconstituted chicken. Hey, this is a man who loved food all his life. Can't he have some dignity? It made me feel bad. It was as though we were off-stage, not in the middle of a real-life drama, and she was interpreting things for me, the audience, from stage left. He's like a baby, she said. But I feel bad even typing this, because I know that Dad's well-being is in the nurses' hands much of the time, and this may somehow jinx him.
Let me sleep on it.
The beautiful image above is from Everett Potter's Travel Report website. Here's the link: http://www.everettpotter.com/blog/2010/06/steve-jermanoks-active-travels-mt-katahdin-maine.html.
The beautiful image above is from Everett Potter's Travel Report website. Here's the link: http://www.everettpotter.com/blog/2010/06/steve-jermanoks-active-travels-mt-katahdin-maine.html.
Don't feel bad about advocating for your dad, Alice. Your instincts are sound. There's no reason for him to hurt and there's no reason for anyone to patronize him. Hang in there, you're doing great. The best thing you can do for him besides the obvious (being there and making the best choices you can, all of which you are doing) is to speak up for him on his behalf. We all love nurses, we've established that, but do not worry about them, worry about Dad. Do not give the staff too much power. He is powerless, but you are not.
ReplyDeleteAlso, there is no reason on God's green earth that he should be moaning in pain for hours. Demand pain relief. Period, end of report. At all times. Current protocol considers pain a vital sign now like temperature or pulse. Demand pain relief.
Thank you Kim! I did ask for it and then consulted Sis and she said the same thing, he should not be suffering in pain, there's no reason for that. it's just the medicine took about an hour to work and so it was very hard. yikes. will be tiger going forward. alice ;)
ReplyDeleteThere is not much worse than witnessing someone we love who is experienceing pain. It is terrible! (Unfortunately, we know.) Being the strong advocate that you are is the best thing to do and you are doing a wonderful job. It’s not an easy thing, hunting down doctors and nurses, requesting this and that, asking questions. Kim is right, Uncle J should not have to be in pain – no matter what it takes. They are supposed to assess pain regularly. I do have a suggestion that worked for me: I know this is hard, but try to keep doing “normal” things when you are not at the hospital. Welcome diversions. It’s the only way to survive.
ReplyDeleteI like how you are writing about good things, too (like the tomato, the mountain and the granite remnant). Hang in there, Alice. Love, Lin
thank you Lin. please say hi to Aunt Edith for me today. love alice xoxoxoox
ReplyDeleteHi Sweetie,
ReplyDeleteYou and your dad are in my prayers.
Stay strong - tap into your truth and beauty, it will carry you through.
much love!
Hi Nicole...i just saw your note now...thank you so much...you have such good energy...love alice
ReplyDelete